One year ago today I left Rush for home. It's hard to believe. So, let's see, what's new.
The slow release 4-AP script turned out to be the same thing I was already taking. (stupid me) It's just a higher dose. Last Sunday I had a reaction to it, though, and ended up in the ER. It was the original, lower dose. I'm back on it and I'm fine. No one knows what the heck happened. I have to keep a script for Ativan with me in case it happens again. Human error in the compounding lab? I can't afford the Ampyra that Dr. Balabanov prescribed so I need to stick with the 4-Amino pyridine.
About two months ago I got an "almost" menstrual period. No signs of it again, though. I'm still breaking out like a teenager! This summer has been one of the hottest on record and that still does a job on me. My electric bill is horrifying but I need the A/C.
I'm still working a little here and there and getting through it fairly well. Once it cools off a bit and the kids are back in school I think I'll try to pick up a little more work. I need the exercise and I like the $!
I am flying out to Chicago on September 7th to see Dr. Balabanov. I had an MRI last week and for some reason he requested an echo cardiogram, which I'm having next week. Blood labs, too. My hair is growing so fast I'm almost wishing I had a shaved head again. Just kidding. My hair is ultra thick and super curly. I may be imagining this but I swear there's less grey, too.
I feel pretty good. Still don't have any of the old fatigue and I have more confidence being out. I have to honest and say that I don't exercise much. If I did I would be doing better. This time of year I like to wear dresses and shorts so I don't wear my sneakers with the foot drop device on it and that is the biggest reason I don't look like I have had any improvement with my walking. If I had it on I'd be cruising all over the place.
Bottom line: I'm still improving.