Tuesday, May 25, 2010

New Script

Last week I started taking 4-amino pyridine in a slow release formula. I had high hopes but it wasn't working. Today I called the compounding pharmacy back to refill my original script. Unfortunately, the slow release wasn't giving me enough oomph to get through the day. On Saturday I fell 3 times! I don't need to have it working while I'm sleeping. Oh well.

Sunday, May 16, 2010


The biggest improvement that I am noticing lately is my balance. Up until about a month ago I don't think I had any balance improvement. Then I started to suspect that it might be getting better and finally about a week ago I decided that it definitely is better. A few minutes ago I stood on one leg, put my other out behind me and stood, totally still. No problem!! I also walked from one room to the other while looking at the ceiling. I wouldn't have attempted this not too long ago. (I can't believe the cobwebs on my ceiling!)

I still have not had a menstrual period but I also no longer have hot flashes. My hormones must still be going crazy, though, since I am breaking out like a teenager. My hair is growing like crazy and I have to admit that I think I'm liking it. It's curly and kind of cute. I have people asking me where I have it permed!

I'm just feeling really good in general. Last weekend Andy and I went out to celebrate my 44th (gulp) birthday and I had a blast! We even danced and I didn't fall. I've been doing tons of yard work and even a little work on the boat.

I've had a few people call me with questions about the treatment since they are going to try it. My advice to you all is this: Hang in there. It's worth it!! I'm living proof!!