Saturday, August 8, 2009

August 8th 2009

So here it is Saturday night. I've been home exactly 2 days. I feel great. My energy level is amazing. I didn't have any trouble with the dressing on my wound from the line and I've changed it twice. At this point I have a regular band aid on it since the gauze was drying into the scab.

I got a wig today from a place that was recommended by the cancer society. It was quite a bit more expensive than I thought (almost $300) but that's OK. It's nothing great (it's a wig after all) but it will certainly do for the times I'm in public and feel that I need it. I find that the bald head is quite liberating. I have no issue what so ever just going out with a hat on but the kids want me to have hair when I am out with them. It looks fairly natural and the woman that owns the shop I went to was fabulous.

I have an amazing amount of patience with the kids. I think it's because I have energy and can think clearly. They have also been very well behaved since I've been home. The bickering that is usually constant has all but ceased. Andy has become a regular Mr. Mom and I love it. He is out fishing for the night and he certainly deserves the break.

When we got up this morning I showed him how I can lift my left leg and bend it. I have lots more flexibility and even my typing is easy since my left hand doesn't tire like it used to. I just want to go, go, go!

I started taking 5000 IU, daily, of vitamin D this morning since Dr. Balabanov wanted me to. I was on 50,000 IU a week a little while back but didn't see any improvement. I am a firm believer in the benefits of Vitamin D, however. I want to clarify that the reason the surgeon didn't want me to leave on Thursday is because he was afraid that the wound would bleed on the way home. His office called Friday to check on me.

I will get around to posting about the whole experience, from start to finish, including how to get in touch with Rush, as soon as I get a chance. Right now I'm trying to get back to a regular routine. At this point I can't say enough good things about Rush and this treatment in general. More soon!


  1. this makes me so happy and excited for you!!!!! we'll be back in RI at the very end of august. i'd love to see you! take you out for a celebration!!! whatever you want!

  2. I am thrilled that you are feeling so well and doing things you've not been able to in years. Hopefully the medical community will soon see how this potent drug can be managed carefully and be helpful to more people.

  3. this is all wonderful news, Jane!!
    -- Anne B.

  4. So glad to hear you are doing well. Please post the contact info ASAP as I am rally considering this treatment. Thanks