Thursday, July 30, 2009

Ground Zero

This is it. I've bottomed out. Tomorrow I get Neupogen and the regrowth starts. My platelet count is still at 108 which thrills me since I will need a transfusion if it goes below 50. I've become a total germophobe. My in-laws must be proud! (just kidding Mom and Dad)

I have to say that this whole experience has been quite a bit different from what I imagined. I really thought it would be a lot worse than this. Physically it hasn't been at all difficult. But, mentally, I had a couple of days in the beginning where I was wondering if I could just go home. I still have a moment here and there but I force myself to refocus and I'm fine. The only tears I've shed were as soon as Andy walked out the door and only for a half minute or so.

The nausea wasn't anywhere near as bad as expected and being neutropenic isn't that bad either. I didn't think I would be able to walk. When I got on the bed just now I lifted my left leg almost all the way on. I couldn't do that last week!

I wouldn't hesitate to recommend this treatment. That's why I started this blog. So far, I've been VERY pleasantly surprised! Phew, I need a nap after all this typing.


  1. Jane,
    I am so proud of you. You researched. You did not take someone else's story and run with it. You consulted with Dr. G and opted to go to Rush where they regularly do this. You prepared yourself for the worst and expected the best.

    The rest is yet to come and you are probably in the most tenuous and difficult days of this whole thing right now even though you are pretty much over the effects of the Cytoxan as far as nausea, constipation, frequent urination, bloating, headache, visual changes, hair loss....

    May your counts stay intact and the Neupogen do it's wonderful job and you come back to society within a couple of weeks.

    Blessings and we continue to hold you.

  2. Actually, Cherie, I can't take the credit for this. I heard about this from a friend that had it at Johns Hopkins in November. I did do tons of research once I heard about it but I'd never be here without her urging me to check it out.

  3. i'm curious about your hair, honey. is it still on your head?